Living AS Champions : Nagaraja's Story | Fight The Fuse

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Nagaraja's Story

Video Transcript :

Diagnosis and Initial Treatment

I was diagnosed for Ankylosing Spondylitis back in 2012. Like everybody does, I went (to) an orthopedician with a back pain problem and he suggested me to get some medical tests done and I did that.

Post that he advised me to go to a Rheumatologist. And when I went to the Rheumatologist, he told me that I have been diagnosed for Ankylosing Spondylitis.

I didn’t know that much about Ankylosing Spondylitis, not aware of any of the history, what it is and things like that. He gave me medicines for about 3-6 months and asked me to do some exercises and you know, move on with that.

I think, things passed, and pain used to come and go, not that, it wasn’t troubling that much. I started to get acute pain in my back, and I knew exactly what, why it was happening. I realised the importance of meeting the Rheumatologist only when it happened in 2017 to me.

The Lessons I Learnt

The important thing what I understood from during the consult is it’s important that I keep doing exercises, I keep myself mobile, not sit in one place, don’t make the decisions on your own, just because of someone else’s recommendations, without the knowledge of the situation, knowledge of Ankylosing Spondylitis, the fuse and keep consulting with the Rheumatologist.

In all of this journey, my family has supported quite significantly. I made them part of the situation. I took my family along with me to the doctor.


My Transformation Into a Marathoner

During the visit with the Rheumatologist, I asked if it is okay for me to run. He suggested that if I want to run if I could do that, that’s not a problem. Ankylosing Spondylitis is not going to stop in running. I developed a passion for running. I ran 10 km and TATA Mumbai marathon 20 km and a full marathon of 42 km last year.


During the lockdown, my daughter asked how am I going to run, keep my passion going during the lockdown because you’re not supposed to go out.


My Life Today

And what I decided to do was I started to run inside 1 km, 2 km and over a period of time I was able to even run 10 km inside my house and one thing which I’m doing right now, even though my fuse and the pain is under control, I have not stopped visiting the Rheumatologist, which is very important and I urge all of my Ankylosing Spondylitis fellow warriors to join the ASWS organization so that we help the community to fight the fuse together and so that we all can live a very happy life, even with, along with Ankylosing Spondylitis. Keep doing exercises and eat healthy food and stay a happy life.

Thank you.